Lanette, Author at Gray Matters Foundation

8395 days ago

Do you know what you were doing 8395 days ago? I do. I checked into the Hilton that is down the street from St. Joesph’s Hospital and Medical Center – Barrow Neurological Institute. I was preparing for my early appointment . I was schedule for my first craniotomy to remove a baseball size mass. At…

Gray Matters Welcomes A New Look!

New Look, Same Mission! It’s been 15 years since we first stuck our tongues out at tumors and the Gray Matters Foundation is doing better than ever! We are excited to reveal that our sweet, little turtle has finally gotten the glow up she truly deserves. Although our turtle has received a major makeover, our…

Zachary Young “not forgotten”

In memory of my son, 24-year-old Zachary Young who passed away 10-02-2020. Zach was diagnosed with a brain tumor on 06-12-2015. He was 18 years old and had just finished his first year of college, making The Dean’s List both semesters. One year earlier in May 2014, Zach had just graduated high school 12th out of 338…

Giving Heart

This past weekend, I had the amazing opportunity to attend the annual Escape to Thrive conference hosted by the Bag It Cancer organization. What a wonderful few days! As one of 30 selected attendees, the event created a safe space to learn, share and build new relationships with advocates in all cancer circles. Our weekend…

Secret Elf Sticker Surprise

Hi there, Brain Buddies! Christmas came early this week when a routine stop at the post office turned into a SUPER surprise!! I had popped in to check my P.O. Box and the Post Office attendant asked me to come to the back room because they had some packages for me. I was expecting a…

Thomas P McAlvanah

This is Thomas P McAlvanah City Attorney for the City of Zephyrhills. This was 16 years ago before falling victim to #GBM I only met him through his wife Kris one of my best friends in the #braintumor community These tumors don’t discriminate they are brutal even to the brilliant. Through this tragedy, we have chosen to find beauty. Kris…

Glioblastoma Awareness Day July 17th

Do you have a question about IvyBrainTumorCenters Phase 0 clinical trials or just a general question about a #braintumor diagnosis? Be sure to tune in at 9 am (PST) on July 17 as @NaderSanai and his team of experts will be taking all your questions live on Facebook for #NationalGlioblastomaDay.

My Experience as a Participant in the AACR Scientist↔Survivor Program

This March I had the opportunity to attend the AACR (American Association for Cancer Research) Annual Meeting as a participant in the Scientist↔Survivor Program. As a 20 year brain tumor survivor, I have spent the better part of the last two decades supporting and educating those affected by brain tumors. Being accepted into the SSP…

11th Annual Gray Matters Foundation Night at Chase Field

LET’S PLAY BALL! Join us for our 11th Annual Arizona Diamondbacks game fundraiser! We have great Lower Level, Bullpen Reserve seats available for just $20 per ticket. About the Game Tuesday, May 14, 2019 @ 6:40pmArizona Diamondbacks VS Pittsburgh Pirates Chase Field401 E Jefferson StPhoenix, AZ 85004 TICKET SALES ARE NOW CLOSED Reserve Tickets Purchase…

The Scar

“Scars are history written on your body.” This photo was taken in 2002. It was post surgery 3 & 4. A year after this the tumor returned near my brain stem and surgery was no longer an option so I did 6wks of radiation and chemo by pill for 1 year. 2007 I…