8395 days ago
Do you know what you were doing 8395 days ago? I do. I checked into the Hilton that is down the street from St. Joesph’s Hospital and Medical Center – Barrow Neurological Institute. I was preparing for my early appointment . I was schedule for my first craniotomy to remove a baseball size mass. At that point I had no idea I had brain cancer. By the way 8395 days equals 23 years. I will celebrate my Cheers to TWENTY THIRD Tumorversary tomorrow September 2nd 2021. I thought it was really cool that 23 years ago I was up writing notes to all those important people in my life. 23 years later because of technology I am able to write to so many of you. All of you are important to me. I wrote the notes because I knew what it was like to wait. I sorta had insider info since 6years earlier I was a family member patiently waiting for my grandma to have her brain tumor surgery. In fact I had the same surgeon. Well I knew what it was like to wait so the caregiving kind of person I am I wrote notes for Michael to read while the day progressed. I wrote personal notes for those I knew would be waiting. I wrote notes for the group so they could be read out loud. I even wrote the if I don’t make it notes. 🤦🏻♀️. Micheal was instructed to pass those along if something happened. Looking back I wanted to take care of everyone and I really was taking care of me. Tonight I want the newly diagnosed to know your not alone and your feelings are valid. Feel! So you can HEAL. For those traveling along. I don’t know exactly how you feel but I can share how I feel and continue to make sure you know You are not alone! Together supporting one another through the ups and downs happy times , sad times, tears and laughter we will get through this. Today I reflect. I am happy I can be a voice. I thank God for answered prayers. I have watched my children become wonderful adults. I don’t know why me and not others but I can only do what I have been called to do. My favorite verse Proverbs 17:17 a friend loves at all times. If you are my Brain buddie aka friend then you are loved. If you are reading this thank you for being part of my journey.
💜 to you my Brain Buddy! You inspire me, make me strong and make me smile!