braintumorsstink Archives - Gray Matters Foundation

Glioblastoma Awareness Day July 17th

Do you have a question about IvyBrainTumorCenters Phase 0 clinical trials or just a general question about a #braintumor diagnosis? Be sure to tune in at 9 am (PST) on July 17 as @NaderSanai and his team of experts will be taking all your questions live on Facebook for #NationalGlioblastomaDay.

Twenty year TUMORVERSARY

Today I celebrate 7300 days since my very first brain surgery ( I have had 5)! I have had some amazing days and my share of not so amazing days. The most important take away is I was given days others with brain cancer did not get. I don’t take that for granted. So…

Senator John McCain’s Death from Brain Tumor Triggers Sadness

After learning of Senator McCain’s passing yesterday, it triggered reflection and some sadness. Let me explain. I love encouraging and sharing support. I believe it is what I was created to do, however this calling comes with a price. When you help those who are living with a disease that has no cure building relationships is…

Warrior Ribbon

Wear your ribbons! Be a voice & talk about tumors. It’s May and that means it’s brain tumor awareness month. The ribbon in the photo is a ribbon my sweet BRAINGL CHRISTINA gave me while she battled. Her stepdad made it so we could share awareness in the neighborhood, we had matching ones. Today it…

Stinky monkey feet

. My car has a leak UGH! Arrived at dealership checked in and started my wait. My “IF ONLY FOR ONE” begins. I see this little boy who I now know is Max. He was hanging out with his mom and her boyfriend. The room is large but filled with lots of customers ready to…

Keeping Record

If you have followed my journey, or if I have visited you on your journey you know I am an advocate for keeping your records. Having your medical information within reach is vital. I suggest creating 2 books one for you and a backup for a caregiver. Maintaining medical records makes it easier to provide…

How Can You Help? Donate Stamps and Stickers

In an early blog we mentioned Red Mtn Highschools Bio Tech club called Stem created a BRAIN TUMOR AWARENESS and fundraiser campaign for us. We want to open this for Public participation. The Gray Matters foundation is a nonprofit organization created to support and empower brain tumor patients and their loved ones through encouragement and…

Students Create Campus Brain Tumor Awareness Campaign

May is Brain Cancer Awareness month & the Biotech Club at Red Mountain High school has teamed up with the Gray Matters Foundation to help STAMP out Brain Cancer. The Gray Matters foundation is a nonprofit organization created to support and empower brain tumor patients and their loved ones through encouragement and personal outreach.…

Brain Buddie Survivor Story: John Van Wagner

My name is John Van Wagner and May 30th 1995 after an 8.5 hour surgery I was told I had a menigioma brain tumor. It was benign but it wrapped around my facial nerve and left my face almost completly paralyzed. I had to endure reconstructive surgery and thankfully was able to regain some movement…

Lanette is a 2017 Hon Kachina Award Recipient

Congratulations to The Gray Matters Foundation’s own Lanette Veres a 2017 Hon Kachina Award Recipient! Presented in Phoenix, Arizona annually since 1977, the Hon – or healing – Kachina Volunteer Awards program is designed to honor people making significant volunteer contributions to the healthcare field and to increase public awareness about volunteerism. Out of 100 applicants, it is…