Twenty year TUMORVERSARY

Today I celebrate 7300 days since my very first brain surgery ( I have had 5)! I have had some amazing days and my share of not so amazing days. The most important take away is I was given days others with brain cancer did not get. I don’t take that for granted.   So…

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There was support! I was not alone.

It was my honeymoon weekend that we attend our first brain tumor support group together. It was the 2001 Florida Brain Tumor Association conference. In 2000 I attended a BT conference in CA. It caused me to want more. At that event, I heard this GBM survivor named David M Bailey sing a song called…

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Keeping Record

If you have followed my journey, or if I have visited you on your journey you know I am an advocate for keeping your records. Having your medical information within reach is vital. I suggest creating 2 books one for you and a backup for a caregiver. Maintaining medical records makes it easier to provide…

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19 Years Ago Brain Surgery Began

It was the morning of 9-2-98 Micheal drove me to Barrow and we checked in to pre-op. Some things you never forget.  My dad had given me a shirt that said don’t forget your dad loves you and it had his photo on the front so I made sure I was wearing that so he…

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The Night Before My First Brain Surgery – 18 Years Ago

18 yrs ago tonight I would await  my first brain surgery to take place bright and early in the morning.  Micheal and I  stayed at Hilton Suites  near the hospital to make sure we were set for success in the morning. That evening I sat writing notes & cards for all my friends & family…

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